I Am a Support Group Leader

Parkinson's Support Group

As a support group leader, you play a vital role in communicating critical information to people with Parkinson’s disease, their care partners, and families.

You can use the Aware in Care materials to help you discuss the risks that people with Parkinson’s face in the hospital, as well as some of the strategies available to avoid these risks and get high quality care during the next hospital visit.

The Parkinson’s Foundation recommends the following steps for you to take:

  • Get a sample kit. Call the Parkinson’s Foundation Helpline at 1-800-4PD-INFO (473-4636) to order a few sample kits to show your members, as well as postcards to let members know how to order their own kits. We also have posters you can display to raise awareness of hospitalization issues. If you live in Canada, call Parkinson Alberta at 1-877-243-9992 or Parkinson Society British Columbia at 1-800-668-3330 to find out how your members can order their kits.
  • Participate in the Aware in Care training offered by the National Parkinson Foundation. This 20 minute audio PowerPoint provides an overview of the program and the key messages to communicate. You will be given the link to this training when you call to order the kits.
  • Download the Aware in Care Discussion Guide for support group leaders. This document provides a suggested format for the support group meeting that will focus on Parkinson’s and hospitalization.

Need assistance? The Parkinson’s Foundation is here to help. Call us at 1-800-4PD-INFO (473-4636) or email helpline@parkinson.org.