I Am a Care Partner

Parkinson's Care ProviderAs a care partner for a person living with Parkinson’s disease, you know firsthand the importance of advanced preparation in managing the disease.

Aware in Care is designed to help people with Parkinson’s and their care partners plan for the next hospital visit, whether it is scheduled or an emergency.

The National Parkinson Foundation recommends the following steps for you to take:

  • Connect with your local NPF chapter to get involved in our campaign to change hospital care for people with Parkinson’s for the better! Call our helpline at 1-800-4PD-INFO to learn more.
  • Review the Hospital Action Plan. Take the time to understand how to use each item in the kit and how to prepare for either a planned or emergency hospital visit.
  • Pack the Aware in Care Kit. Add an emergency contact list, an extra supply of the patient’s Parkinson’s medications, a completed Medication Form, and a copy of his or her health care proxy card.
  • Suggest that the person with Parkinson’s wear the new Parkinson’s Disease ID Bracelet and put the Medical Alert Card in his/her wallet. These two items work together to help alert health care workers about the Parkinson’s diagnosis in case of an emergency situation.
  • Share Aware in Care information with the patient’s Parkinson’s doctor and primary care physician. Talk to them about the strategies you will use to try to get better care during the next hospital visit.
  • Never leave a person with Parkinson’s disease alone in the hospital.  Ask family and friends to help you the next time your loved one is hospitalized so there is always someone at his or her side during the entire hospital stay. Be sure each person who is helping out understands the needs of the patient and is able to communicate those needs to health care staff.

Need assistance? The National Parkinson Foundation is here to help. Call us at 1.800.4PD.INFO (473.4636) or email helpline@parkinson.org.